• VHL Disease Charity Ball 2015 VHL Disease Charity Ball 2015 This year's Glitz & Glamour Charity Ball, in aid of VHL UK/Ireland and Alzheimer's Society, was held on Saturday 25th July 2015 in Peterborough
  • Make a difference - fundraise for VHL disease Make a difference - fundraise for VHL disease From bake sales to marathons, there are many ways to fundraise for VHL UK/Ireland. Find out how to you can receive sponsors and more.
  • Information and support for VHL disease patients/caregivers in the UK and Ireland Information and support for VHL disease patients/caregivers in the UK and Ireland Find your nearest genetic centre, support groups, fact sheet, advice and other vital information
  • NEW! VHL t-shirts, vests and pin badges NEW! VHL t-shirts, vests and pin badges Support VHL UK/Ireland by purchasing charity VHL pin badges, t-shirts and vests and wear with pride

 

 

 

Please join us Saturday 22nd October at Saint Mary’s Hospital, Oxford Road, Manchester.

Click on last year's London photo to sign up.

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von Hippel Lindau (VHL) disease patients battle a series of malignant and benign tumours/cysts their whole lives. The VHL gene is involved in many other forms of cancer. Manifestations commonly occur on the retina, brain and spinal cord, kidneys, pancreas, inner ears and adrenal glands (pheochromocytoma).

As well as supporting VHL, the charity also supports the conditions of Hereditary Leiomyomatosis and Renal Cell Cancer (HLRCC) and Birt-Hogg-Dubé (BHD).

VHL UK/Ireland aims to raise funds via fundraising and donations for research, provide information and support for those affected and raise awareness.

Latest blog posts

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Latest news

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Shop

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Why I'm running the Marathon... Read more
What is normal?... Read more
8 handy tips for fundraising... Read more

 

The Charity is officially registered in Ireland ... Read more

Dave O'Brien + 10 others raise over £7,600... Read more

£5,000 + £4,995 donated to research equipment... Read more


Purchase t-shirts, pin badges and running apparel, with all proceeds donated directly to VHL UK/Ireland.